Monday, June 16, 2008

Mis-diagnoses

So it's been, what- since February and Leahness has been through extensive tests, taken loads of medication, had dr. appointment after dr. appointment (notice the non-capitalized dr.! - I'll elaborate on that in a second), and still she continues to have seizures that at times make me feel like a puddle of helpless mommy mud. Her neurologist has left the practice where we take her, so we have to start all over with a new person with a medical degree. It is frustrating to see her gulp down, very well I might add, large amounts of medicine each morning and night and have her seizing her way through the day. Doctors these days don't have "it" in them like they used to. It's infuriating to me to watch so many doctors just throw a diagnoses and medication at someone as if it were NOT a person and just a med-school text book example. So many illnesses are mis-diagnosed each year. Did you know that according to BMJ (British Medical Journal), 90,000 people are MIS-diagnosed with epilepsy each YEAR? Not to mention the rate of misdiagnoses of cancer with an average rate of around 40%, and heart-attack misdiagnoses of around 28% according to the IOM (Institute of Medicine). To err is human, but come on! To be lazy is quite another story. Doctors seem to want to see as many patients as possible in one day, throw them into tests only to have them come out the other end with a "guess". It is evident when the waiting time for most doctors is upwards toward 1 hour. Is what Leahness has even epilepsy or is it something else causing seizures? They don't know. With technology that will adjust the temperature of a room simply by standing in it, can't doctors with years of training be able to tell me for sure that her complications are from short circuits in her brain? Why then didn't the MRI show that? So to not capitalize the letters of doctor is a blatant display of chosen disrespect for the profession. I'm sure there are truly caring doctors out there, but they are hard to come by and that is truly sad. This just-get-by attitude the world has taken on is saddening. A day for the typical 21st century doctor: go to the office, write some tests, some prescriptions on my little pad, go home to my healthy kids and repeat. I don't see any pondering, any investigation, no true sympathy, no sense of pride in the physicians Hippocratic oath. My little girl and so many others are important and deserve the time it may take away from making barrels of money to sit for a while and research, explore, derive game-plans, make calls to colleagues, whatever-it-takes to find out how to make a patient feel like their lives are in good hands. I read medical journals all the time now and so many times I've seen the phrase, "take your health in your own hands". What in the world??? Is that like when the teachers of this country decided they weren't going to teach kids as much anymore or work with them as much with discipline because parents need to be more involved? The last time I looked we were supposed to be a community of people, not individual families in their own little boxes. I'm not so much in to Hillary Clinton, but I think she has a good point with her book It Takes a Village. People have become so disconnected paradoxically in such a "connected" age. doctors are, in my opinion, the most difficult to watch because in their quest for the good life, they are achieving it by selling the rest of society short. I believe every doctor should look at every patient as if it were their own child, their own mother or father, etc. But sadly they don't and the figures of mis-diagnoses speak for themselves; patients are no more than a paycheck. I salute the doctor out there who cares! -and I want an appointment for my daughter!

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